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September 19, 2012
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3 cycles out of 12 done, one every two weeks. Every time more side effects prop up and the latest landed me in the ER. Apparently my body is just too beaten down by the major surgery and the chemo onslaught, and decides to randomly SHUT DOWN to try and reboot.

I don't know that I can do this for six months. Have an appointment with my chemo oncologist Friday to discuss dosages/ alternatives, etc. So tired, and so frustrated. I can't be randomly going into shock and passing out, my chibi is already plenty nervous. He actually suggested that maybe he could not go to school and stay home so he could be around if someone needed to call 911. Not right.

So back to the drawing board I guess, and looking at options. Something's got to change...
  • Listening to: Metisse - Boom Boom Ba
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:iconmajnouna:
Majnouna Featured By Owner Oct 2, 2012  Professional General Artist
Major hugs to you :( There has to be a way!
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Had to stop today - couldn't have it because my blood count is just too low. So I'm thinking of stopping altogether for now, at least until the scan in December shows us where we are at. :hug:You know me and my stubborness, m'dear. I'll kick its but yet. :)
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:iconkuroi-koumori:
Kuroi-Koumori Featured By Owner Sep 23, 2012  Hobbyist Traditional Artist
There are many alternative health options that can provide supplementive care during chemo treatments to strengthen the body. Find an alternative doctor with a lot of experience and they can help.
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Thank you, we are looking into this. My current doctor doesn't want supplements/ alternatives, but now that we are looking into stopping chemo I am researching alternative therapies. At the very least looking to strengthen the immune system and combat some of its effects. <3
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:iconmarker-guru:
Marker-Guru Featured By Owner Sep 20, 2012  Professional Traditional Artist
my 2 aunts and my mum all had/have to deal with this. It's so brutal! Sending all my good mojo to you. <3
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Thank you. Hat off to anyone who goes through it, and big hugs to you -- I know how it affects the family too! <3
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:iconhawthorne-cat:
hawthorne-cat Featured By Owner Sep 20, 2012  Professional General Artist
pot oil... [link]
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Someone else was suggesting this in my support group, thank you for the link!!
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:iconangelasasser:
AngelaSasser Featured By Owner Sep 20, 2012  Professional General Artist
Ugh I know chemo can be rough! My aunt is going through her first treatments right now and she is very fatigued. Your little one is so sweet! I hope that you can find an option that works for you and your family. Stay strong, hon!
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Angela, my love to your aunt. I hope that she sails through her cycles! For me, the effects just kept adding on and on and... cost/benefit analysis, we will be stopping it early...
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:iconsoniacarreras:
SoniaCarreras Featured By Owner Sep 20, 2012  Hobbyist General Artist
Awww, me como al chibi, esa reacción me rompe el corazón :hug:

La quimioterapia es MUY dura, pero hay que acabar con esas células... Espero que el oncólogo encuentre una alternativa, de todos modos. Aun así, poco a poco irás recuperando fuerzas, ya lo verás

Yo tengo fé en que vas a conseguirlo. Seguro. Y aquí me tienes para lo que necesites! No puedes rendirte! Aun tengo que ir a verte en persona!!! :tighthug:
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Gracias linda. No es rendirme, aunque la quimio.... bueno, espero le este dando una paliza al cancer, porque el resto de mi cuerpo esta vuelto naco!

La verdad hoy me cancelaron el tratamiento porque mis white blood cells estaban peligrosamente bajas. Dado eso, las desmayadas y todo lo demas... ya. Acordamos que la semana entrante hablaremos para no mas quimio por ahora. Ya en Diciembre tengo en scan, y veremos ahi si toca mas o que.
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:iconsoniacarreras:
SoniaCarreras Featured By Owner Oct 11, 2012  Hobbyist General Artist
Sé que la quimio es horrible, pero tienes una ventaja, el cancer que tienes no es tan maligno como otros, así que si tienes que suspender la quimio un tiempo, no es tan grave. Ya lo leí, ya... Claro, las defensas se afectan, por eso estás tan débil.

Poco a poco. A ver si han conseguido quitar toda esa babosa alienígena de tu interior!!!
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:icongold-seven:
Gold-Seven Featured By Owner Sep 19, 2012  Professional Traditional Artist
Aw, Apis. I hope you find a way for all of you to see this through and get to the end of it with as little pain and stress as possible. :(

Hugs to you and yours.
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Ah Jenny, thank you! :hug: We'll get there. For now, I just need to feel like my body is healing, not just... going downhill, which is how the chemo feels. They canceled my cycle today as my white blood cell counts were dangerously low, so I think we are at the end of our patience for chemo. I figure that I have my MRI in December, so we can see how well everything worked this year, and since the drs themselves tell me there's absolutely no research that chemo does ANYTHING for my type of cancer since it isn't blood based...

meh. I'd rather stop now, let my body recover, spend Aiden's birthday and the next month and a bit feeling like myself. <3
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:icongold-seven:
Gold-Seven Featured By Owner Oct 15, 2012  Professional Traditional Artist
I really hope that you get around the rest of chemo and can look back in a year or two and say, "whew, glad I didn't put myself through THAT when it worked so well without it!"
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:iconuneide:
Uneide Featured By Owner Oct 16, 2012
Today I'm done with chemotherapy, its official! :)

I only managed 4 out of the 12 cycles - I had so many side effects and it hit my body so hard that it was decided it was best to stop it. Last week my cycle #5 was cancelled, as my white blood cell count was too low, so today we made the choice with the oncologist to officially end any more chemo. Happily from the blood tests today my white blood cells are back to normal levels now. :)

So... DONE ! I am happy that I had some, which has hopefully helped get rid of any cancer cells left, but even happier that my body now gets the chance to heal. Its finally a chance to put this year's craziness in the background and be able to concentrate on family and other things.

What comes next is waiting for my MRI scan, which won't happen until some time in December. Between now and then I will also have to have the port-a-cath removed ( ow), and it'll have to be flushed every few weeks until it CAN be removed.

After the scan in early December we'll be able to see how everything went. I am REALLY hoping after everything we've done it'll be clear, so prayers and positive energy much appreciated in that regard.
We have a meeting with Dr. J on December 19th, which is when hopefully we'll discuss the scan results.

So for now... cancer treatment is done. For the next couple of months we get to focus on healing, building up my immune system some and enjoying end of year activities with Aiden and Chris - and all our friends!

I am at ease with the decision, both because the dr. that did my surgery said that in all honesty mine was one of the best scenarios for surgery, and that he thought that even without the chemo my outcome is looking pretty good. SO! Onwards, and upwards.

:hugs: Jenny, thank you so much. I hope you know how your support, your encouragement and your beautiful picture helped me make it through this horrid year!
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:icongold-seven:
Gold-Seven Featured By Owner Oct 16, 2012  Professional Traditional Artist
:hug: I'm so glad I could be of any help at all, Apis. I hope so much that this ordeal is over for you now. Here's to 2013!
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:icondrinkteaordie:
DrinkTeaOrDie Featured By Owner Sep 19, 2012  Student Filmographer
Best of luck to you through this difficult time.

A woman in Britain who survived cancer refused chemo and only had booster shots [or something similar] of mistletoe, which helps boost the immune system. This story is a few years old and I'm not suggesting anything, but I thought I'd share what I had read. :)
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Thank you for the good thoughts! Unfortunately my immune system is super compromised due to the operation I had to have to take out the cancer. There are definitely many alternative therapies out there,and I'll be looking into them.
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:iconavancna:
avancna Featured By Owner Sep 19, 2012  Hobbyist Traditional Artist
Have you tried acupuncture to help you survive chemo?

Also, I recommend you try eating more ginger and mushrooms, too.
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Thank you! I haven't tried acupuncture yet, but I am looking into it. Ginger has been a lifesaver!
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:iconavancna:
avancna Featured By Owner Oct 10, 2012  Hobbyist Traditional Artist
How is life treating you now?
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:iconmistytang:
MistyTang Featured By Owner Sep 19, 2012
I'm sending you all good vibes available. :hug:
Keep strong, I really admire your attitude towards all the hardships you've had to deal with. It's really inspiring.
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Thank you very much! I appreciate all the good vibes and energy sent my way very much! :hug:
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:iconanderon:
Anderon Featured By Owner Sep 19, 2012  Hobbyist Writer
I wish you the best of luck. I've heard that chemo is pretty hard on a person's body....there has to be alternatives out there, if you're reacting so poorly to it. Know that my thoughts and good wishes are often with you.
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:iconuneide:
Uneide Featured By Owner Oct 10, 2012
Thank you so much, I appreciate all the energy and good thoughts! We've looked at adjusting the dosage, but for now it looks like we will just be stopping it early. In December I have my scan, and then we'll see how effective everything we did this year has been. If I have to have more after... I think we'll have to look at a different regimen, at least... <3
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