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There are some days I wake up and still ask my husband if it was a nightmare, and I dreamed all of it. Regrettably, it isn't.
I have been debating making my battle with cancer public, and have decided to do so. I have already shared the news with close friends and family, and have had the chance to digest them a little while. We only found out about two weeks ago what the pathology was, so it has taken time to figure out how to plan ahead as much as we can.
Now that those difficult steps ( and many of the practical ones) have been taken, I thought it best to make a public journal. For me, this cancer had virtually no symptoms, instead it grew sneakily to this point
Cancer is not a bad word. It isn't something to be ashamed of, and something that sometimes just ... happens. Mine isn't genetic, it isn't lifestyle related. It is, in the words of my oncologist, a biological car crash. My type of cancer is called pseudomyxoma peritonei, with mucinous adenocarcinoma. Its a mouthful for explaining appendix cancer that spreads in a jello and takes over your organs, so at this point is considered a stage 4. Lack of information is the enemy; the more information, the more research into this ( and all cancers) the best our chances of beating them.
I'm blessed in having a wonderful family and amazing friends, and determined to beat this thing. No jello is going to get the best of me.
Thank you very, very much for all the warm support during my current health battles. ♥
I've started a blog to follow the journey, and hopefully answer some of the questions: beatingjellybelly.blogspot.ca/
I have been debating making my battle with cancer public, and have decided to do so. I have already shared the news with close friends and family, and have had the chance to digest them a little while. We only found out about two weeks ago what the pathology was, so it has taken time to figure out how to plan ahead as much as we can.
Now that those difficult steps ( and many of the practical ones) have been taken, I thought it best to make a public journal. For me, this cancer had virtually no symptoms, instead it grew sneakily to this point
Cancer is not a bad word. It isn't something to be ashamed of, and something that sometimes just ... happens. Mine isn't genetic, it isn't lifestyle related. It is, in the words of my oncologist, a biological car crash. My type of cancer is called pseudomyxoma peritonei, with mucinous adenocarcinoma. Its a mouthful for explaining appendix cancer that spreads in a jello and takes over your organs, so at this point is considered a stage 4. Lack of information is the enemy; the more information, the more research into this ( and all cancers) the best our chances of beating them.
I'm blessed in having a wonderful family and amazing friends, and determined to beat this thing. No jello is going to get the best of me.
Thank you very, very much for all the warm support during my current health battles. ♥
I've started a blog to follow the journey, and hopefully answer some of the questions: beatingjellybelly.blogspot.ca/
Thank you!!!
Bless those of you that sent me cards, art, a messageof encouragementand hope. :)
Surgery was a success, and though they had to take out several orgqns and manhandle others (plus do chemo) they think they got ALL the cancer out.
I will still need chemo in the fall, but things...are looking up, and actually positive. I am out of the hospital, qnd will be heading back home this sunday.
Thank you all for the love, the kindness. You helped me through a really rough time.
Off to Calgary for Surgery
Leaving for Calgary the day after tomorrow - have to be in a few days early for blood tests and surgery prep. Surgery is on the 7th of June.
CONTACT Info and Mailing Address
After speaking with my sister, its probably best to ship postcards/ cards there ( thank you so much for the offer Chelsea! <3 <3 ); so, with her leave, her address is posted up on the blog: ( http://beatingjellybelly.blogspot.ca/ )
Email can be sent to Chris': erekose13ATgmail.com ; between them, they will pass messages and cards along. Thank you so much for the book suggestions, for the prayers and good energy. I do ask that if you have a flu/ nasty cold you do
I HAVE A SURGERY DATE!!!!
I got a date for my Mother of all Surgeries -- June 7th. Tons of things I need to get done before ( a colonoscopy, vaccines etc) but I'm so relieved that we have an actual date now and it isn't that far off.
The MOAS is brutal, but it improves the prognosis significantly. I will probably be in the hospital at least 6 weeks after that, so I likely won't be that active on here.
Still - if you have time to spare a thought or a prayer on that date, they would be much, much appreciated.
Here's to beating the cancer!!!
Surgery is a go!!! :)
Just got home from our consultation with the experts, and the good news is that the Mother of All Surgeries is a go!
Although the tumour has grown again and taken over other areas its apparently low grade enough that it can still be operated on, and hopefully kept at bay with a combination of the operation and chemotherapy- both during ( HIPEC) and in the 3-4 months after.
These will be some long, long months ahead -- but at least there is also a clear hope to hold on to. Onwards and upwards -- thank you for all the wonderful wishes, (Jenny, for your beautiful image!) and all the song suggestions. I was thinking of you all and your positi
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I'm so very sorry it has taken so long for me to send my strongest thoughts and prayers to you. I hope the surgery goes swimmingly and don't doubt your determination and the support of your loved ones can get you through this. Lots of love to you